Wednesday, May 2, 2012

Baby with SMA dies


Avery Lynn Canahuati was born with type 1 spinal muscular dystrophy in November. The doctors said that she would not make it past 2 years old, yet she died at 6 months on Monday. Her death was caused by one of her lungs collapsing because of her genetic disorder. "I immediately performed CPR on her and was able to bring her back to life, but only for a brief period of time before she passed away shortly after arriving at the hospital,” said Mike Canahuati. 3 days prior, Avery had a doctor’s appointment and was looking good so her death “came as a complete shock.” The Canahuatis wrote a blog which contained a bucket list for Avery as if she would live past 2. At first the blog was to keep the family updated, but now it has 2.4 million views. Some things Avery’s parents wanted her to experience before passing on included waking up smiling and playing with Play-Dough. Now two things can be checked off of her list, which was written in first person as if she actually wrote it: not letting SMA take her smile away and taking one last breath, then taking one more before going to live with her Uncle Bryant, Nana Carolyn, Papa George and all her great-grandparents.

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